Wednesday, July 15, 2009

Kylee Update #4

Hello Everyone,

Some of you have been asking how Kylee is doing. Well.... she is doing great! In fact, last Wednesday, after hearing some news about a cousin of Art's who is battling cancer... Kylee said everyone should stop praying for her, since she is feeling better, and pray for her cousin. We just think she is such a special girl.

Kylee is breaking all the records with her recovery. No one has seen anyone recover this quickly from the surgery Kylee had. Her surgeon is so surprised and happy, as are we. The only downside is that we're still not sure if the surgery actually worked. That is what we're praying for now. She has started leaking again and that wasn't supposed to happen. We thought her bladder would be made huge, but apparently, it is supposed to stretch... and, as usual, it isn't stretching. But, we are still trying to stay positive. The surgeon said he has seen this before and then when the bladder stretches, the kid's are suddenly dry like they were supposed to be to begin with. So, still, time will only tell. She is still drier than before and that is good.

We still feel very blessed. Kylee just looks amazing despite everything and she's been able to do some very fun things compliments of the Ronald McDonald House. This place is such a special place to us. Kylee calls it her home away from home. Her highlight of the entire time here was going to see the Mariner's baseball game with her dad. Unbeknownst to us, they had received Diamond Club tickets... which mean they cost $275 - $324 per seat, per game. We're sure they were the $324 seats because when the usher showed them to their seats, they were directly behind home plate! Art was like a little kid with excitement. The tickets included a full gourmet buffet and all you can eat of whatever with seat side service at no extra charge. Kylee said this is the most fun thing she has gotten to do. She has also loved receiving cards and packages in the mail. A huge thanks to all of you who surprised us in this very fun way.

Now, we are hanging out waiting for our next appt which will be this Thursday. At last Thursday's appointment they took out Kylee's s.p. (suprapubic catheter) and Dr. Grady said it was the easiest catheter he has ever taken out. He said most kids scream, etc. etc. Kylee was scared, but laid there and took it like a champ. She even said it didn't hurt that bad. She is amazing. At this appointment, Dr. Grady told us if Kylee is doing well this week, we can come home early. So, we are hoping we get to come home Thursday night or Friday. We'll just have to do some finagling with the airline tickets. We'll let you know. Or, if I don't right away, it's because I didn't have time. I'll write more if we're still here.

I want to thank all of you again for prayers, fasting, and everything else you have all done. We know it's through everyone's faith and positive thoughts for us that Kylee has recovered so quickly. We have had several mini miracles and want to thank all you very very much!

Love, Rebecca(Becky), Kylee & Art

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